Brave in the Attempt

picture of shackled feet with no shoes on
November 2, 2015

Disgust, then sorrow, and finally anger flashed across my face. I blamed this deluge of sudden emotions on a New York Times article—the white lettered headline, framed against a colorful rug and pair of shackled feet, declared “The Chains of Mental Illness in West Africa.” This piece, authored by Benedict Carey, draws upon research by Human Rights Watch to document the use of chains and shackles for people with psychosocial disabilities throughout West Africa.

A deep stigma toward disability coupled with a lack of resources and cultural beliefs around mental health conditions have contributed to the conditions for widespread abuse in West Africa. According to the article, “At last count, Liberia had just one practicing psychiatrist. Niger had three, Togo four and Benin seven. Sierra Leone had none.” To fill the lacuna created by lack of formal medical treatment, religious retreats, known as prayer camps, are seemingly the only options for many families. These camps range from small family-run outlets to large, elaborate operations, often reflecting the personality and vision of the head pastor.

Shackling, often justified by a paternalistic attitude toward people with mental health conditions, has been called a form of torture by United Nations and the World Health Organization has called for an end to such “treatment.” In addition to being locked up in chains for days, months, or even years, people with psychosocial disabilities – either perceived or real – are often subjected to forced treatment and beatings.

Despite the wide range of human rights abuses, oversight of prayer camps is limited and conditions deplorable. In Ghana, where Human Rights Watch surveyed eight camps, nearly all the residents were chained by their ankles to trees in open compounds, where they slept, urinated and defecated, and bathed. Aware of the abuses, the Ghanaian government has pledged to begin monitoring these camps. We now need to see how their words translate into action.

Facing such systemic problems, it is easy to become cynical. To intentionally disconnect. After all, I live in New York, work in the Empire State Building, and, ultimately, retain the ability to put distance—imaginative, geographic, and cultural remove—from the devastating situation in West Africa. Acknowledging and internalizing this privilege is something I have struggled with. As a human rights activist, I am told my mandate is to bear witness and advocate for change. Yet that change, while critical and achievable, is glacially slow and takes place at the macro level. Moreover, political, economic, social forces further constrain and encumber the process. One does not have to look far to lose sight of progress.

Over the past two weeks, I have traveled back and forth from New York to California and Washington, D.C. In Berkeley, I attended the John Gardner Fellowship’s 30th Anniversary celebration Gala. It was inspiring to see so many past fellows still dedicated to public service, and also heartening to learn how much this year of mentorship and exploration means to them as the decades pass. I also had the unique pleasure of sitting next to Dr. Robert Orr, who received the Distinguished Mentor Award for his role in championing the careers of four Gardner Fellows. It was an honor to spend some time with Dr. Orr and hear his insights on everything from accessible humanitarian assistance to climate change.

Returning to New York, I recently attended a meeting with Juan E. Méndez, the UN special rapporteur, or expert on torture. He updated us on his recent follow-up visit to Ghana and echoed the need for mental health and prison reform in the country. Hearing from Professor Mendez reminded me of the need for collaboration and coordination among various human rights oriented organizations.

After the brief New York stop, I was off to Washington, D.C. Returning to the capital, where I spent a summer interning as an undergrad and where many of my close friends now live, felt like coming home. I had the honor of speaking at the Cal in the Capital 50thAnniversary celebration event, which highlighted the transformative experiences this program has created for generations of Cal students. My remarks, given alongside UC Berkeley Chancellor Nicholas B. Dirks and former United States Secretary of Transportation Norman Mineta, presented the perspective of a recent participant, director, and alumni—I emphasized how important programs such as Cal in the Capital and the Gardner Fellowship are to continued public sector engagement.

While attending the White House Fellowship’s 50th Anniversary and Leadership Conference events, I heard from some of the top leaders in American government, academia, and the private sector. These included, among others, United States Attorney General Loretta Lynch and the former Solicitor General of the United States Theodore B. Olson.

At a White House reception for the fellows, President Obama noted the vital importance of the White House Fellowship, and went on to describe the change fellows bring to their communities following their year of service. After his speech, the president walked the rope line and a few of us were able to shake his hand. I thanked him for his leadership to which he responded, “Thank you so much, and make sure you keep doing what you’re doing.”

This week, Human Rights Watch released an 81- page report on abuses against people with mental health conditions and psychosocial disabilities in the semi-autonomous region of Somaliland, in northern Somalia, highlighting the importance of mental health services in post-conflict situations. The researchers found that men there with perceived or actual psychosocial disabilities are also locked up in chains, and suffer from beatings, involuntary treatment, and overcrowding in private and public health centers. Most are held against their will and have no possibility of challenging their detention. I was reminded again of thatNew York Times headline—this month had come full circle.

The last month has forced me to think deeply about the nature and scope of human rights work. A harsh reality is that change does not come in direct proportion to the level of effort or force of will. There is no guarantee that systems will alter or practices progress. I can live with that. From visceral front-page photographs to black tie galas with the nation’s top leaders, the past month has shown me this: we fail by giving up. Ankles and hands are still bound in chains, so we have no choice but to continue advocating, and be brave in the attempt.

headshot of Paras Shah

Berkeley experience: Paras graduated from the University of California, Berkeley with honors in History and Political Science. Over four years he actively participated in student government as a Senior Associate Justice for the Associated Students of the University of California (ASUC), worked as a Resident Assistant, and co-directed the Cal in the Capital program. Additionally, Paras served as External Vice President of Kappa Alpha Pi Pre-Law Fraternity. He has written for Berkeley’s newspaper, The Daily Californian, and conducted research with the UC Berkeley War Crimes Studies Center. For two years, Paras was the co-founder and President of a campus group, Embrace, which fundraised to provide incubators to premature infants in the developing world. Paras is a proud four-time recipient of the California Alumni Association's Leadership Award.

Other service experience: Paras is legally blind and his lived experiences have provided a deep appreciation for our nation’s legacy of civil rights legislation. This past summer Paras interned with the United States Department of Justice’s Civil Rights Division in Washington, D.C. where he assisted in enforcement and implementation of the Americans with Disabilities Act (ADA). In the past he was a political intern in the District Office of Congresswoman Loretta Sanchez. He enjoys volunteering, sports, and a good book. After graduation, Paras intends to obtain a graduate degree and engage with antidiscrimination policy, human rights advocacy, and international affairs.

Fellowship goal: Paras’ Fellowship goal is to dismantle the stigma that surrounds disability, both in the United States and around the globe, by working with laws such as the ADA and encouraging cross-cultural exchanges to explore the commonalties and intersectionalities of difference across society.

Post Fellowship plans: When the Fellowship concludes, Paras intends to continue a lifelong commitment for disability rights advocacy. He looks forward to graduate school and a career focused on serving others.

Commitment to Service: “To me public service is about empowering others, to walk in their shoes without assumption, but with respect and empathy for the unique and multiple identities and spaces we all hold. The goal is to observe, understand, and act; for I cannot be free until those around me enjoy the same rights and those rights are made real.”